Patient & Caregiver Stories
When Ed’s back pain did not subside after visits to the chiropractor and a massage therapist, his concerns grew. When new symptoms arose, Ed visited the doctor and learned he had cancer near his spine. Ed was diagnosed with small cell lung cancer (SCLC), which can be aggressive. Throughout his journey he prioritized staying positive and establishing a solid care team.
When Meaghan was pregnant with her second child, she found herself struggling to get out of bed. Many people assumed she was experiencing depression because she was also coping with the recent death of her brother. What was really going on with her brain wouldn’t be properly diagnosed for another four years.
When Norman was diagnosed with an aggressive form of acute myeloid leukemia (AML), doctors told him the odds were against him. When it came time for a bone marrow transplant, no donors could be found. Then a woman in Germany, who signed up for the registry two days prior, emerged as a match.
Narcolepsy is a condition that is often misunderstood, overlooked and underdiagnosed. Many people will write off excessive daytime sleepiness in teenagers because it is assumed teenagers want to sleep more often. Sam lived more than a decade experiencing symptoms of narcolepsy without a diagnosis.