As we continue to advance our work in biliary tract cancer, we’re focused on reaching patients where they are, which will help inform our approach to R&D and better support patients throughout their care journeys with the resources they need. Partnering with advocacy organizations is one way to connect with patients directly, and in turn, gain insights that will enrich our efforts and help us tailor resources specifically to the needs of patient populations.

When Willow, an active, healthy five-year-old began experiencing unusual symptoms like decreased appetite and fatigue, her mother, Valerie, didn’t assume the worst. But after her bloodwork came back abnormal – showing a critically low platelet count – Valerie’s concerns grew. It was around midnight the following day when a medical team from Children’s National Hospital in DC delivered the news that Willow had acute lymphoblastic leukemia (ALL).

Receiving a diagnosis of any kind has implications not just for the person on the receiving end, but also for their family, friends and the people closest to them. As part of our commitment to patients and their care teams, this National Family Caregivers Month, we shine a light on this essential role and its many nuances.