When Willow, an active, healthy five-year-old began experiencing unusual symptoms like decreased appetite and fatigue, her mother, Valerie, didn’t assume the worst. But after her bloodwork came back abnormal – showing a critically low platelet count – Valerie’s concerns grew. It was around midnight the following day when a medical team from Children’s National Hospital in DC delivered the news that Willow had acute lymphoblastic leukemia (ALL). A medical emergency in a gym class started Megann’s life-changing journey with epilepsy, including a sudden diagnosis and intense treatment plan. Discover Megann’s inspiring story, detailing her challenges with treatment, loss of independence and how she empowers herself and other to live life to the fullest. We strive to put patient priorities first in our research, advancing our understanding of sleep conditions and the needs of those with narcolepsy and idiopathic hypersomnia.
Transforming Lives.
Redefining Possibilities.
Patient & Caregiver Stories
Willow’s Story
Patient & Caregiver Stories
Navigating Life with Epilepsy: Megann’s Inspiring Journey
Science Stories
Addressing Patient Priorities Through Sleep Research
News and Events
Mar 26, 2025
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